Technology | 2020.02.03
Cure HHT Receives Groundbreaking Support from the Chan Zuckerberg Initiative to Create a Patient-Led Research Network to Accelerate the Search for a Cure
Cure HHT has received a two-year capacity-building grant from the Chan Zuckerberg Initiative’s Rare As One Project to develop a patient-led research network, which will accelerate its mission to find new treatments and a cure for HHT disease. HHT (Hereditary Hemorrhagic Telangiectasia), also known as Osler-Weber-Rendu Syndrome, is a genetic disease that affects families for generations. As common as ALS (Lou Gehrig’s Disease), HHT affects 1 in 5,000 people — an estimated 1.4 million worldwide. Cure HHT is the largest HHT advocacy organization and the epicenter of the national and global effort to advocate for HHT patients and families, raise awareness, sponsor critical research and advance treatments. Founded by Dr. Priscilla Chan and Mark Zuckerberg in 2015, CZI is a new kind of philanthropy that’s leveraging technology to help solve some of the world’s toughest challenges.
(PRWeb February 03, 2020)
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